Journal of Science Policy & Governance
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Volume 23, Issue 01 | October 23, 2023
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Policy Memo: Fertility Care Is Healthcare: A Mandate to Cover Fertility Healthcare in California Promotes Reproductive Equity
Natalie D. Gehred(1), Alex Stevens(2), Natalie Moncada(3)
Corresponding author: [email protected] |
Keywords: fertility care; infertility; SB 729; families; healthcare; insurance; in vitro fertilization
Executive Summary
Infertility is a prevalent disease that causes mental and financial distress for those who suffer from it. For Californians affected by infertility, treatment access is limited by high out-of-pocket costs, as the State does not currently require health insurance plans to cover the cost of fertility services. However, California is currently considering a bill (SB 729) to mandate coverage of fertility care in the large-group insurance market. We recommend the State Assembly pass SB 729 as written to increase the availability of fertility treatments in a politically and economically feasible way. Additionally, we recommend the State amend informed consent procedures to better relay the fertility care options available to patients. Individually and jointly, these measures will alleviate the financial burden of fertility healthcare on California families.
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Background header image courtesy of SCI IVF Hospital
Natalie D. Gehred is a Ph.D. Candidate in Molecular Biology at UCLA, where she studies the role of chromatin structural proteins in cardiac fibroblast activation. Natalie is an active member of UCLA’s Science Policy Group and hopes to work in health or biomedical research policy when she graduates. Natalie received her B.A. in both Genomics and Computational Biology and Classics from Washington University in St. Louis in 2019.
Alex Stevens is a Ph.D. candidate in the Biochemistry, Molecular and Structural Biology Department at UCLA. He works in a structural biology lab where he investigates the structures which underpin the pathogenicity of various microbes including Herpesviruses and Trichomonas vaginalis. Alex is new to the science policy field but is interested in politics and hopes to use his inquisitive character to determine how policy impacts stakeholders and how policy can be changed to improve society. He received a B.S. in Biochemistry and an Anthropology Minor from Arizona State University in 2019.
Natalie Moncada is a Ph.D. candidate in the Molecular, Cellular and Integrative Physiology Program at UCLA. She works in a neurobiology lab where she studies the role of sleep after brain injuries. She received her B.S. in Biological Sciences at the University of California – Irvine. Natalie has also represented UCLA students as part of the Student Researchers United, where she worked with other graduate students throughout the University of California system to negotiate a contract for student researchers.
Alex Stevens is a Ph.D. candidate in the Biochemistry, Molecular and Structural Biology Department at UCLA. He works in a structural biology lab where he investigates the structures which underpin the pathogenicity of various microbes including Herpesviruses and Trichomonas vaginalis. Alex is new to the science policy field but is interested in politics and hopes to use his inquisitive character to determine how policy impacts stakeholders and how policy can be changed to improve society. He received a B.S. in Biochemistry and an Anthropology Minor from Arizona State University in 2019.
Natalie Moncada is a Ph.D. candidate in the Molecular, Cellular and Integrative Physiology Program at UCLA. She works in a neurobiology lab where she studies the role of sleep after brain injuries. She received her B.S. in Biological Sciences at the University of California – Irvine. Natalie has also represented UCLA students as part of the Student Researchers United, where she worked with other graduate students throughout the University of California system to negotiate a contract for student researchers.
References
- American Society for Reproductive Medicine. 2019. “Fertility preservation in patients undergoing gonadotoxic therapy or gonadectomy: a committee opinion.” Fertility and Sterility 112(6):1022-1033. https://doi.org/10.1016/j.fertnstert.2019.09.013
- American Society for Reproductive Medicine. 2023a. “What Is Infertility?” American Society for Reproductive Medicine. 2023. https://www.reproductivefacts.org/faqs/frequently-asked-questions-about-infertility/q01-what-i s-infertility/.
- ———. 2023b. “California State Infertility Insurance.” May 21, 2023. https://www.reproductivefacts.org/resources/st ate-infertility-insurance-laws/states/california/.
- California Health and Safety Code. 2023. HSC. https://leginfo.legislature.ca.gov/faces/codes_di splaySection.xhtml?lawCode=HSC§ionNum= 1374.55.
- California Health Benefits Review Program. 2020. “Analysis of California Assembly Bill 2781: Treatment of Infertility.”
- ———. 2022. “Analysis of California Assembly Bill 2029 Health Care Coverage: Treatment for Infertility.”http://analyses.chbrp.com/document/view.php? id=1682.
- ———. 2023. “California Senate Bill 729: Treatment for Infertility and Fertility Services.” https://www.chbrp.org/sites/default/files/bill documents/SB729/SB%20729%20Infertility%2 0Abbreviated%20Analysis%20Final_revised%2 00420.pdf.
- California Insurance Code. 2023. INS. https://leginfo.legislature.ca.gov/faces/codes_di splaySection.xhtml?lawCode=INS§ionNum= 10119.6.
- Centers for Disease Control and Prevention. 2019. “ART and Multiple Births: Key Findings.” January 31, 2019. https://www.cdc.gov/art/key-findings/multiple -births.html.
- ———. 2023. “Policy Documents: The Fertility Clinic Success Rate and Certification Act.” March 20, 2023. https://www.cdc.gov/art/nass/policy.html.
- Charles, Shana Alex, Susan H. Babey, and Joelle Wolstein. 2022. “The State of Health Insurance in California: Findings From the 2019 and 2020 California Health Interview Surveys.” UCLA Center for Health Policy Research. https://healthpolicy.ucla.edu/publications/Doc uments/PDF/2022/StateofHealthInsuranceinCali fornia-report-jan2022.pdf.
- Corney, Roslyn Heather, and Amica Jane Swinglehurst. 2014. “Young Childless Women with Breast Cancer in the UK: A Qualitative Study of Their Fertility-Related Experiences, Options, and the Information given by Health Professionals.” Psycho-Oncology 23 (1): 20–26. https://doi.org/10.1002/pon.3365.
- Crawford, Natalie M., Heather S. Hoff, and Jennifer E. Mersereau. 2017. “Infertile Women Who Screen Positive for Depression Are Less Likely to Initiate Fertility Treatments.” Human Reproduction 32 (3): 582–87. https://doi.org/10.1093/humrep/dew351.
- Crawford, Sarah, Boulet S.L., Jamieson D.J., Stone C., Mullen J., and Dmitry M. Kissin. 2016. “Assisted reproductive technology use, embryo transfer practices, and birth outcomes after infertility insurance mandates: New Jersey and Connecticut.” Fertility and Sterility. 105(2): 347-55. https://doi.org/10.1016/j.fertnstert.2015.10.009
- Dickler, Katie Young, Jessica. 2019. “Infertility Treatment Is Burying Families in Debt as They Choose to Have Children Later in Life.” CNBC, April 28, 2019. https://www.cnbc.com/2019/04/26/infertility-t reatment-is-putting-families-in-debt.html.
- Domar, A. D., A. Broome, P. C. Zuttermeister, M. Siebel, and R. Friedman. 1992. “The Prevalence and Predictability of Depression in Infertile Women.” Fertility and Sterility 58 (6): 1158-1163. https://doi.org/10.1016/S0015-0282(16)55562- 9.
- Fertility Within Reach. 2022. “The Policymaker’s Guide to Fertility Health Benefits.” February 2022. https://img1.wsimg.com/blobby/go/0b7c0112- 5710-4353-8702-f7463cd0d6e9/downloads/ FWR%20PMG%20Feb%202022-electronic%20 version.pdf?ver=1694475119340.
- Garvelink, Mirjam M., Moniek M. ter Kuile, Rinske M. Bakker, Willemijn J. Geense, Esther Jenninga, Leoni A. Louwé, Carina G. J. M. Hilders, and Anne M. Stiggelbout. 2015. “Women’s Experiences with Information Provision and Deciding about Fertility Preservation in the Netherlands: ‘Satisfaction in General, but Unmet Needs.’” Health Expectations 18 (5): 956–68. https://doi.org/10.1111/hex.12068.
- Kaiser Family Foundation. 2021. “2021 Employer Health Benefits Survey - Summary of Findings.” KFF (blog). October 2021. https://www.kff.org/report-section/ehbs-2021-s ummary-of-findings/.
- Katz, Patricia, Jonathan Showstack, James F. Smith, Robert D. Nachtigall, Susan G. Millstein, Holly Wing, Michael L. Eisenberg, Lauri A. Pasch, Mary S. Croughan, and Nancy Adler. 2011. “Costs of Infertility Treatment: Results from an 18-Month Prospective Cohort Study.” Fertility and Sterility 95 (3): 915–21. https://doi.org/10.1016/j.fertnstert.2010.11.026
- Kelley, Angela S., Yongmei Qin, Erica E. Marsh, and James M. Dupree. 2019. “Disparities in Accessing Infertility Care in the United States: Results from the National Health and Nutrition Examination Survey, 2013-16.” Fertility and Sterility 112 (3): 562–68. https://doi.org/10.1016/j.fertnstert.2019.04.044
- Klein, Amy. 2020. “I.V.F. Is Expensive. Here’s How to Bring Down the Cost.” The New York Times, April 18, 2020, sec. Parenting. https://www.nytimes.com/article/ivf-treatment -costs-guide.html.
- Lemos, Elkin V., Dongmu Zhang, Bradley J. Van Voorhis, and X. Henry Hu. 2013. “Healthcare Expenses Associated with Multiple vs Singleton Pregnancies in the United States.” American Journal of Obstetrics and Gynecology 209 (6): 586.e1-586.e11.
- https://doi.org/10.1016/j.ajog.2013.10.005.
- Leonhardt, Megan. 2019. “Women Are Traveling Far and Wide for Affordable IVF—Here’s Why It’s so Expensive.” CNBC, August 13, 2019. https://www.cnbc.com/2019/08/13/women-ar e-traveling-far-and-wide-for-affordable-ivf.html.
- Marklund, Anna, Frida E. Lundberg, Sandra Eloranta, Elham Hedayati, Karin Pettersson, and Kenny A. Rodriguez-Wallberg. 2021. “Reproductive Outcomes After Breast Cancer in Women With vs Without Fertility Preservation.” JAMA Oncology 7 (1): 86–91. https://doi.org/10.1001/jamaoncol.2020.5957.
- Menjivar, Caroline, Buffy Wicks, Anthony J. Portantino, Scott D. Wiener, and Evan Low. 2023. SB-729 Health Care Coverage: Treatment for Infertility and Fertility Services. SB. https://leginfo.legislature.ca.gov/faces/billTextC lient.xhtml?bill_id=202320240SB729.
- “New York State Medicaid Update.” 2019. https://www.health.ny.gov/health_care/medicai d/program/update/2019/2019-06.htm#ovulatio n.
- Oktay, Kutluk, Brittany E. Harvey, Ann H. Partridge, Gwendolyn P. Quinn, Joyce Reinecke, Hugh S. Taylor, W. Hamish Wallace, Erica T. Wang, and Alison W. Loren. 2018. “Fertility Preservation in Patients with Cancer: ASCP Clinical Practice Guideline Update.” Journal of Clinical Oncology 36(19): 1994-2001. https://doi.org/10.1200/JCO.2018.78.1914.
- Patel, Premal, Taylor P. Kohn, Jordan Cohen, Benjamin Shiff, Jaden Kohn, and Ranjith Ramasamy. 2020. “Evaluation of Reported Fertility Preservation Counseling Before Chemotherapy Using the Quality Oncology Practice Initiative Survey.” JAMA Network Open 3 (7): e2010806. https://doi.org/10.1001/jamanetworkopen.2020 10806.
- Peipert, B. J., Chung, E. H., Harris, B. S., & Jain, T. 2022. “Impact of comprehensive state insurance mandates on in vitro fertilization utilization, embryo transfer practices, and outcomes. American Journal of Obstetrics and Gynecology 227(1), 64.e1–64.e8. https://doi.org/10.1016/j.ajog.2022.03.003.
- Portantino, Anthony J. 2019. SB-600 Health Care Coverage: Fertility Preservation. SB.
- https://leginfo.legislature.ca.gov/faces/billTextC lient.xhtml?bill_id=201920200SB600.
- Quinn, Gwendolyn P., Susan T. Vadaparampil, Ji-Hyun Lee, Paul B. Jacobsen, Gerold Bepler, Johnathan Lancaster, David L. Keefe, and Terrance L. Albrecht. 2009. “Physician Referral for Fertility Preservation in Oncology Patients: A National Study of Practice Behaviors.” Journal of Clinical Oncology 27 (35): 5952–57. https://doi.org/10.1200/JCO.2009.23.0250.
- Rakshit, Shameek, Emma Wager, Paul Hughes-Cromwick, Cynthia Cox, and Krutika Amin. 2023. “How Does Medical Inflation Compare to Inflation in the Rest of the Economy?” Peterson-KFF Health System Tracker (blog). July 26, 2023. https://www.healthsystemtracker.org/brief/how -does-medical-inflation-compare-to-inflation-in the-rest-of-the-economy/.
- Reynolds, Meredith A, Laura A Schieve, Gary Jeng, and Herbert B Peterson. 2003. “Does Insurance Coverage Decrease the Risk for Multiple Births Associated with Assisted Reproductive Technology?” Fertility and Sterility 80 (1): 16–23. http://doi.org/10.1016/S0015-0282(03)00572-7
- Rooney, Kristen L., and Alice D. Domar. 2018. “The relationship between stress and infertility.” Dialogues in Clinical Neuroscience 20(1): 41-47. https://doi.org/10.31887/DCNS.2018.20.1/klro oney.
- Smith, James F., Michael L. Eisenberg, David Glidden, Susan G. Millstein, Marcelle Cedars, Thomas J. Walsh, Jonathan Showstack, Lauri A. Pasch, Nancy Adler, and Patricia P. Katz. 2011. “Socioeconomic Disparities in the Use and Success of Fertility Treatments: Analysis of Data from a Prospective Cohort in the United States.” Fertility and Sterility 96 (1): 95–101. https://doi.org/10.1016/j.fertnstert.2011.04.054 Society for Assisted Reproductive Technology. 2020. “Final National Summary Report 2020.” Society for Assisted Reproductive Technology. 2020. https://www.sartcorsonline.com/rptCSR_Public MultYear.aspx.
- The National Infertility Association. 2022. “New York Insurance Law.” RESOLVE: The National Infertility Association. February 16, 2022. https://resolve.org/learn/financial-resources-fo r-family-building/insurance-coverage/new-york insurance-law/.
- The National Infertility Association. 2023. “Insurance Coverage by State.” RESOLVE: The National Infertiltiy Association. August 2023. https://resolve.org/learn/financial-resources-for-family-building/insurance-coverage/insurance -coverage-by-state/.
- Thoma, Marie E., Alexander C. McLain, Jean Fredo Louis, Rosalind B. King, Ann C. Trumble, Rajeshwari Sundaram, and Germaine M. Buck Louis. 2013. “Prevalence of Infertility in the United States as Estimated by the Current Duration Approach and a Traditional Constructed Approach.” Fertility and Sterility 99 (5): 1324-1331.e1. https://doi.org/10.1016/j.fertnstert.2012.11.037
- U.S. Census Bureau. 2021. “2021 American Community Survey 5-Year Estimates, Table DP03.” Data.Census.Gov. 2021. https://data.census.gov/table?g=040XX00US06& tid=ACSDP5Y2021.DP03&moe=false.
- Weigel, Gabriela, Usha Ranji, Michelle Long, and 2020. 2020. “Coverage and Use of Fertility Services in the U.S.” KFF, September 15, 2020. https://www.kff.org/womens-health-policy/iss ue-brief/coverage-and-use-of-fertility-services-i n-the-u-s/.
- Zebrack, Brad. 2009. “Information and Service Needs for Young Adult Cancer Survivors.” Supportive Care in Cancer 17 (4): 349–57. https://doi.org/10.1007/s00520-008-0469-2
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ISSN 2372-2193
ISSN 2372-2193